Part 2 – it’s harder now than it was in the beginning

First of all apologies for not updating the blog more sooner, things have been full on for Angel over the last few months,lots of appointments and her medical issues having a daily effect on her.

As with the previous post, this is the update of the results of tests etc.

Angels thyroid function checked recently showed free T4 of 10.5 and a TSH of 0.31mU/L, which is normal, her energy levels are variable but sometimes quite low, he felt it would be worthwhile to increase the thyroid dose from 50mcg to 62.5 mcg daily, to see if energy levels improve., also Angels growth had slowed down so he increased the growth hormone injections from 1.1mg to 1.2mg.

She is still struggling with episodic changes in moods, facial rash(vascular flushes) temperature and also memory, he warned Angel and Mum there might be a component from her recent proton beam therapy radiotherapy with regard to memory and energy levels and a psychological component to some of these and some of the other symptoms.However he is in no doubt that Angel has a prominent hypothalamic component to her symptoms.

He is to review her in 4 months.

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2 thoughts on “Part 2 – it’s harder now than it was in the beginning

  1. This is the first of your blogs I’ve read and it’s good know how things are going. Angel is a beautiful young girl with a beautiful nature.
    I will continue to pray for her.
    Live Audrey xxx

  2. Angel – Thinking of you as always. Keep smiling. Love from Mrs Hirst and all at Bispham Endowed Church of England Primary School. xx

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