Hi all, Yet again 2019 was a busy year and haven’t managed to do a update until today. Firstly I’ll start with the main thing, my Brian tumour remains stable. Even though inside the tumour has now got a new cyst the team say it is post treatment and everything has remained stable. I have […]
I know I haven’t posted in a while but I have created a post but I’m still part way into writing it It’s now six years into my journey and still plodding on. So far the tumour remains stable and my next MRI is in September. Anyway I hope everyone is well. We’re now in […]
Trying to get my head around the results i(Bev) really had lots of questions I should have asked whilst with the team so I rang the nurse specialists for answers the next day,first of all how can something that is calcified change, what is meant by nobbly as I can not find a description for […]
24th April exactly the day before my 4th year from diagnoses of an inoperable brain tumour I had my 6 monthly routine MRI and MRA. Obviously they have been every 6 months for the past year. We did the ‘normal’ routine of attending the oncology daycare to have cannula inserted to be able to […]
A happy new year to all my blog followers, I hope you all had a good time this Christmas and new year in 2017, and I hope 2018 is a good one for you all. Sorry I didn’t post anything in 2017 but last year was a rollercoaster of a time for me. I […]
Multi-disciplinary meeting was attended by Angel,Bev,oncology nurse specialist,clinical psychologist,educational psychologist and Dr Thorp who led the meeting. Angel was struggling at school with fatigue, memory problems and mood swings such that she now attends school on a part time basis.Medically Angel is doing well, in terms of her non-medical ongoing issues they are as follows […]
After trying to sort out education for Angel,and to get her some normality with her attending school, and the many issues she has due to the brain tumour, and informing her team and school of the changes we had made,everyone was happy with a reduced timetable for Angel in school, you would kind of feel […]
First of all apologies for not updating the blog more sooner, things have been full on for Angel over the last few months,lots of appointments and her medical issues having a daily effect on her. As with the previous post, this is the update of the results of tests etc. Angels thyroid function checked recently […]
Really struggling with doing a blog post with everything that has been going on for tumour trooper so I will do it in a few parts. Photos below are all of happy times for Angel, the beginning of her journey. As most of you will be aware if you have Angel or Bev on Facebook,things […]
Angel attended Blackpool Victoria Hospital for this test to see how much melatonin she absorbs, as she doesn’t produce it ,or very little. She never slept well before diagnosis of the brain tumour and still has hit and miss nights of being able to sleep,the issue is not with going to sleep but actually staying […]
Angel Gregson 